More On me....

I am determined not to abandon this blog midway, like so many i have seen online, so i am going to ensure that I post at least 4 days a week, if not more.

To record more about me and my condition----

I was diagnosed with Endometriosis in April 2005 after a diagnostic lap. One nedometrioma on the left ovary which was drained and some adhesions. Rt.O was fine. Went on GnRH A injs may/June/July 2005. Periods reappeared in end Nov 2005- painful, then 2 cycles of very light bleeds and no pain at all; then back to very painful periods- so painful that i ha to go on painkiller injs during ;periods. I came to DREAD my monthly cycles.

USG in sept 2006 showed HUGE endometrioma on Lt.O. Laparatomy and left oophorectomy in mid sept.06. Extensive endometrial adhesions- ovaries attached to large intestines, moderate to severe endometriosis.Treatment sept/oct/nov/dec 2006. Periods started from may 2007. BAD pain, back on the painkiller injs., terrible pain b/w periods, elongated cycles, unexplained abdominal pain b/w periods etc etc etc. Multiple tests to diagnose prob, since gynaec absolutely refused to consider re-appearance of endometriosis. after a lot of heartburn and hopelessness, found a wonderful Dr.(P @mumbai) who diagnosed severe adenomyosis on his first scan!!!!

I started to reaffirm my faith in God and miracles. I had almost given up hope of ever being healthy again or leading a normal life. Dr.P diagnosed my problem so accurately and repeated symptoms that were so exact to whatever I had been facing that i almost cried in his office.

Underwent surgery for wedge re-section of uterus, pre-sacral neurectomy, clearing post-operative adhesions and surprise- large hernia of the rectus muscle- which they repaired. In retrospect, all the pain i had been facing for years and years had been actually because of the adnomyotic uterus(which had always been labelled as "bulky uterus with posterior wall fibroid" in every USG i ever had).the pre-sacral neurectomy is to take care of the painful periods. also the severe unexplained abdominal pain b/w periods must have been because of the rectus muscle hernia.

Have had 2 menstrual periods since surgery- once in april that lasted for 12 days- minimal pain and then in end June that lasted 8 days- minimal pain. very heavy flow for 2-3 days each time(more in april than June).

Since i have only one functioning ovary and that too with very less volume, Dr.P advised us to get into an ART program with donor oocyte.Took Zoladex3.16mg injections in mid-June/Mid-july/mid-Aug for supression to synchronize with the donor's cycle. Donor finalized in end August 2008. USG on 28th August showed uterus with adenomyoma on posterior wall and slightly distorted endometriomium. endometrial thickness= 6mm. Dr.P said things as expected, not to worry about distorted endometrium or adenomyoma.

Blood tests on 20th sept.'08 showed S.E2 - 15.6pg/mL and S.LH- 0.1 mlU/ml . Suppression had been successfully achieved and I was asked to go on PROGYNOVA 2mg X3 a day and get an USG done on the 30th of sept to check endometriomium thickness. I was advised to take the FAS kit(antibiotics- 1 day doses) and to start on Folic acid-5mg, Vit.e and ecospirin-x1 each a day.
The FAS kit antibiotics caused low grade temperature and slight nausea which passed in 2 days time.( Started with meds from night of 22nd Sept '08).

I am currently taking progynova 2mg x3 per day( post-B.fast/lunch/dinner) and 1 each of folic acid/Vit.E/ecospirin per day(all post dinner). No major side effects yet, although i did feel extremely fatigued for the first 3 days.

I was a little concerned about taking progynova which is estrogen, given my history of adenomyosis and endometriosis, so thought of clarifying it with the clinic. They reassured me that it would not be too bad. Lets hope so.

The donor will be stimulated from 28th onwards.I am yet to know the details of the egg retrieval dates etc . Will get to know more when we get to Mumbai on the 5th I guess. Until then just got to pray and hang in there. It helps that I feel detached from all this and hope it stays this way until involvement is needed.

More later :)